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Daniel
  • 29, Male
  • Christchurch
  • New Zealand
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Your fluctuations in the way you are

Started 13 hours ago

What do you do for fun?

Replied 20 hours ago

What do you do for fun?

Replied 1 day ago

 

First you forget names, then you forget faces, then you forget to pull your pants up, then you forget to pull them down

Profile Information

Country:
New Zealand
USA? What state?
Not in the USA
City:
Christchurch
Sex:
Male
Name of Illness and Year
Bickerstaffs' Brainstem and Limbic encephalitis 2005, Gillain Barre 2004
Your role? (Caregiver, Survivor,...)
Survivor
Relationship Status:
Single
How do you spend your time?
Rehabilitation
Studying how to improve in rehabilitation
Studying Chinese
Working volunatrily (just finished)
Improving where and however possible
What Are Your Dreams For the Future?
I've often thought of encephalitis like a home detention sentence - initially homebound and unable to leave, then restricted by fatigue and physical limitations lessening the places you can go to, then tentatively allowed back out to see things again, but limited by factors like darkness, rush hour and so forth. I can't wait to see my limitations finally vanish. Completely. Goneburger. Like a fart in the breeze. sionara. h'asta la vista....baby.
What are your strengths?
100% sober and sane - no longer even kid about lacking sanity to imply possessing super motivation - I am motivated and motivated by no longer feeling questionably minded (self analysis - if labelling yourself mad is your choice then I in no way imply anything being wrong with that)
Do you have a website?
http://www.no.co.nz
Are you on facebook?
yes I am
Favorite Music:
Rhythmical hardrock (ie not pointless noise)
Rhythmical rock (ie sounds good and not 3 chord 1 hit wonders)

as well as various snippets from other genres evident on my playlist.
Favorite Musical Artists: (Notice... it's plural now!)
Metallica Shihad Silverchair Elemenop Tool Nirvana ACDC Bush
Midnight Youth Pearl Jam Split ENZ James Blunt AnikaMoa OpShop
Linkin Park The Valves Eskimo Joe Foo Fighters The Feelers U2
Brooke Fraser Matchbox 20 Goodshirt The Killers REM The Cult
Muse Stellar Filter Aerosmith Evermore Snow Patrol Nickelback
Favorite TV Shows:
24
WWE
Sports events (cricket, rugby league & professional tiddly
winks)
The X files
Favorite Movies, Actors and Actresses:
Ravenous Nightmare on Elm Street (all) Star Wars (all) The Cell
Resident Evil 1-3 Crouching Tiger, Hidden Dragon Jackie Chan
Evil Dead 1-3 Team America, World Police Memento
The Shawshank Redemption Monty Python Life of Brian (The)
Friday the 13th (all) Monty Python & Quest for the Holy Grail
*NOTE : I Am ALWAYS PREDISPOSED TO ANSWERING MESSAGES FROM OTHER SURVIVORS/CAREGIVERS : IF YOU WANNA CHAT WITH SOMEONE THEN CHAT WITH ME AS I'M ALWAYS KEEN*

I obtained a scholarship in 2003 in the study of Mandarin Chinese to attend a school in LanZhou, central China, in the year 2004 to continue my studies but contracted the neurological virus 'Gillain Barre' during that year. This took 6 months to recover from before I stupidly went back at the beginning of 2005 to finish my scholarship. Then I was back home and it was July and my head hurt like buggery and my body functioned like it had been buggered, as the only partially recovered first infection of the preceding year turned into encephalitis, and the real journey began....

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Daniel

From nothing to something

I actually recall waking in hospital in the midst of a cold New Zealand winter (icy, no snow) in 2005.....and again the next day when I thought it was the first, and the day after that until, maybe a month afterwards, I began to expect to awaken in hospital. I recall this having happened now but, at the time, it felt like waking after a hard night drinking and trying to recall the events of the previous evening as everyone informs you of how silly you were. Everyone still said things of the even… Continue

Posted on October 29, 2009 at 5:44am —

Daniel

Adjusting

I got what I call the, 'adaptation copout craptaculer' - spiel from my neurologit about 2 years ago now, almost to the day. I went into the hospital having fooled myself into believing he'd fall over himself with surprise and interest about how much I'd then improved. He did the complete and utter opposite without being directly offensive,

"Your eye astigmatizm is still all over the place" I can still hear him tell me in his thick, South African accent (the accent makes the memory clearer in my… Continue

Posted on October 20, 2009 at 9:19pm — 3 Comments

Daniel

Those small moments which stand out

Like anyone in recovery from encephalitis - I've had an abismal memory. Veering away from a sob story about it, while also tempted to write this as a discussion, I'll post this as a blog because it's something which came back to me while chatting with someone on the site recently, and I feel it's just wierd that this should stand out in my mind while so many other things seem to have just vanished - things which I know are important and would greatly help my sanity if recalled accurately, but wh… Continue

Posted on October 16, 2009 at 1:31am — 2 Comments

Daniel

Why I dislike Christmas

'I'll be well by the end of 2005' I told myself in that year, the year I fell sick. I thought this because it had happened that way in the preceding year of 2004, when I'd been fortunate enough to get over Gillain Barre (neurological viral illness) in about 4 months and return to China, where it all began, in 2005 and begin my second health-related journey with Bickerstaffs brainstem and limbic encephalitis.

Something always remained in the back of my mind during the 4 hospital stays over a 6 m… Continue

Posted on October 9, 2009 at 6:45pm — 2 Comments

Daniel

Becoming numb to getting on with things

I recall not so long ago feeling driven and motivated to naively doing every conceivable thing I could possibly do in order to get well and move on, "When are you gonna move on with your life?" people asked as I stammered back in reply things like,
"W-when I g-get w-well", or, "W-when I s-s-stop bec-oming diz-zy all the t-time" - such replies were met with doubt-filled looks implying that such things were never going to happen and that I needed to come to terms with the situation and move past t… Continue

Posted on September 29, 2009 at 12:02am — 3 Comments

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At 12:35am on November 7, 2009, Hope said…
How are you?
I have been pondering, thinking through your questions on a few different posts.
At 12:31am on November 2, 2009, Hope said…
Daniel,
I can't sleep! Wanted to stop in and say hi! I am thinking of you, it is 12:30 AM here!
At 5:35pm on October 30, 2009, Hope said…
I miss you, I miss talking to you.
((((((HUGS))))))
At 7:14am on October 30, 2009, Hope said…
Daniel,
Goodmorning, oh it's not morning there oh, good night.

So, how are you?
At 1:26pm on October 18, 2009, Hope said…
How are you? I miss you.
At 6:12pm on October 17, 2009, CR said…
Daniel, Thank You for the sentiment but I think that my husband is really interested in art because his father was an artist , John's daughter from a previous marriage received the talent and John I think was trying to do something in the art realm as a tribute to his father,I am sad that it didn't fill that void but at least John tried,right

"Well on to the next venture"
At 11:56pm on October 16, 2009, CR said…
While I was visiting my sister in North Carolina It seems that the art gallery didn't go so well so we decided to hang it up before we went into allot of debt that would be hard to recoup from.
At 11:51pm on October 16, 2009, CR said…
Hi Daniel, How are you?
At 2:14am on October 9, 2009, Hope said…
I hope you are doing good. I miss you. How are you?
At 12:43am on October 4, 2009, Hope said…
I miss you? How are you?

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