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mandy hall
  • 39, Female
  • lincoln
  • United Kingdom
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fibromyalgia
2 Replies

Started this discussion. Last reply by Stephen Aug 6.

I DID IT!

Replied Feb 5

 

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Profile Information

Country:
uk
USA? What state?
lincolnshire
City:
lincoln
Sex:
female
Name of Illness and Year
herpes simplex encephalitis sept 2008
Your role? (Caregiver, Survivor,...)
survivor
Relationship Status:
In a Relationship
How do you spend your time?
at the min very little as suffer from fatigue but i enjoy walking the dogs and i have a horse and a donkey
What Are Your Dreams For the Future?
to get to normal as much as possible and ride my horse again and work
What are your strengths?
i was highly motivated so need to get that back
Favorite Musical Artists: (Notice... it's plural now!)
enrique gloria estefan pink loads really
Favorite TV Shows:
simpsons animal programs csi
Favorite Movies, Actors and Actresses:
i like animated stuff like shrek dirty dancing dont like scary stuff

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mandy hall

CHRISTMAS

Hi everyone i woundered what everyone was doing for xmas, i was talking with my partner a few weeks ago and asked them if i had a nice xmas last year as i carnt remember it , they said yes and we went to my mums.
This year we are having my dad and his wife over, does anyone else find it hard sometimes where to go as my parents have remarried, the only time they have ever been in the same room was when i was really ill in hospital, i woke up to find one lot on one side of the bed and the other on… Continue

Posted on November 30, 2009 at 12:36pm — 3 Comments

mandy hall

TATTOO DESIGN

Hi i am going to have a tattoo to raise money for the encephlitis society here in the uk, just wondered if anyone had any idea's elizabeth has kindly said she will draw and design it, i want it to represent how we have all survived e and learning to live again with the new you, for me i want it as a reminder that i do have courage and strength , determination, AND IM STILL ALIVE, and im learning to live with the new me .
So if anyone has any idea's please let me know ?
thankyou mandy

Posted on June 8, 2009 at 12:14pm — 6 Comments

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At 2:08am on December 18, 2009, Elizabeth said…
Hi,
I like that name.
Stephen is more bothered by heat--it saps his energy. It has to be really, really cold to bother Stephen. But as far as I can tell, 'e' tends to leave survivors intolerate of one or the other...meaning it's a very common sympton. I am very cold natured, so obviously Stephen and I clash at times LOL.
Did you take pics of the snow? I do love snow and we rarely get any here--on my page I put up pics of our snow we got a couple weeks ago
At 10:53pm on December 16, 2009, Elizabeth said…
Oh Mandy, He is so darn cute. What's his name?
At 1:56pm on December 15, 2009, Elizabeth said…
a puppy? How wonderful. What's his name? I can't wait to see the pics. Let me know when they are up?
We are paying for our house--still have a payments, so we are worried...just keeping on praying and believeing for miracles.
At 9:11pm on December 14, 2009, Elizabeth said…
Hi Mandy,
We are okay---truly just trying not to give into despair and depression--just really, really need a job and are prayiing about that. Need at least direction from God. Anyway, enough of that...how are you? Has the pain eased? Stephen is trying a new med (a anti Parkinson's med) that seems to be helping with some motivation stuff...Let me know how you are . Hugs,
At 4:13pm on November 16, 2009, Elizabeth said…
Different horse that just looks like doneta. This is one at a place near us..he just sort of took to me. :-)
At 11:53pm on November 15, 2009, Elizabeth said…
Hi Mandy, I'll tell Stephen about the acupuncture. Stephen is ok--we are so worried about finances but are trying to keep our eyes and hearts on God. Stephen has been neuro psych testing (over 12 hours) and has seen a different neurologist (who ordered a new MRI). We are hoping to learn more about dealing with things post 'e'. Will let you know when we do
At 7:08pm on October 23, 2009, Elizabeth said…
The Wragby show looks like it was loads of fun. LOVE the pics.
At 10:44pm on October 14, 2009, Elizabeth said…
Thanks Mandy, Once I sort things out, I'll take you up on that offer to talk.
How are you doing? Feeling any better now that you've tried acupuncture? I know it was wierd having needles in you but I've read good things about acupuncture for people with pain. I'm interested in knowing if it is helping you. Hugs,
At 1:40pm on October 13, 2009, Elizabeth said…
We are having a really tough time at the moment....really tough time.
At 9:09pm on October 2, 2009, Elizabeth said…
Have you started acupuncture? If so, is it helping? How are things going?

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